Disease Experience Expert Panel (DEEP)

Disease Experience Expert Panels (DEEPs) are people living with chronic disease or their relatives, who can provide disease specific insights and advice based on their experience.


By Nina Louise Dalgaard, DEEP manager |  2 min read

Patients are no longer passive recipients of healthcare but rather experts by experience who, by sharing their unique insights of what it is like to live with a chronic disease, can enhance the future of patient care.
Novo Nordisk is guided by the principle that a patient centered approach must be informed by input from patients and win-win partnerships. In order to achieve this principle, the Patient Relations team works in partnership with a network called the Disease Experience Expert Panels (DEEPs).

The DEEPs are experts in the diseases that Novo Nordisk is treating or aims to treat. These are: type 1 diabetes, type 2 diabetes, diabetes complications, obesity, haemophilia, and growth disorders.

DEEP members are divided into four different categories:

  • DEEP 1: Patient Leaders 
  • DEEP 2: Patient Organisation members and advocates
  • DEEP 3: Individual Patients 
  • DEEP 4: Novo Nordisk employees

The Patient Relations team works with DEEP members on a range of different projects including advisory boards, workshops, interviews and presentations.

Paul Chesworth, Disease Experience Expert from UK

As patients and advocates the members of Novo Nordisk Disease Experience Expert Panels have expert knowledge as individuals with a chronic disease. They have a unique insight into what it is like to live every day with their condition. As we work towards developing treatments for chronic diseases it is essential that patients’ expertise, knowledge and experience is included in what we do. 

Patient Relations team follows methodology of the European Patients’ Academy on Therapeutic Innovation (EUPATI) and the Patient Partner project funded by the 7th Framework Programme of the European Commission. According to this methodology there are 6 roles people living with a chronic disease can take when engaging with industry and academia:

Patient Engagement roles

The philosophy behind the Disease Experience Expert Panels in Novo Nordisk is to listen and learn, and use this knowledge to improve life for others affected by similar conditions. 

“It is really important to me that we work together… I think industry working together with clinicians and patients as equal partners is the way forward” Ken Clare, DEEP member.  


The Kidney Connect project is illustrative of a Disease Experience Expert Panel (DEEP) collaboration. Learn more about the project here.