The HERO study

 

HERO (Haemophilia Experiences, Results and Opportunities) is an international initiative guided by the HERO International Advisory Board and supported by Novo Nordisk. HERO aims to build a comprehensive understanding of life with haemophilia as seen from the perspective of people with haemophilia, their families and their healthcare providers.

Giving haemophilia a voice.

The goal of HERO is to:

  • Advance the understanding of psychosocial issues related to living with haemophilia
  • Provide a strong platform for building advocacy and supporting improvements in care
  • Facilitate use of outcomes to advocate for improvements for quality of life and health outcomes for people living with haemophilia

Visit www.herostudy.org to learn more.


Fact cards: Key insights into life with haemophilia

Completed in 2012, the HERO study surveyed 1,386 people in 11 countries, making it the largest ever multi-national, multi-method study of life with haemophilia. The HERO study has given us some key insights into the challenges facing people living with haemophilia.

Download HERO study fact cards

Learn more about the HERO study insights
 

HERO study logo and wordmark
Collage of people living with haemophilia


The HERO study has given us some key insights into the challenges facing people living with haemophilia. 

HERO insights


HERO Summit

Collage from the HERO summit 2013


The HERO Summit 2013 puts the insights to work. Learn more here: 

HERO Summit 2013